Baby who looked eight months’ pregnant because of deadly disease is saved thanks to her doting dad’s kidney donation Baby who looked eight months’ pregnant because of deadly disease is saved thanks to her doting dad’s kidney donation
A BABY whose deadly disease made her look eight months’ pregnant has been giving a life-saving kidney transplant, thanks to her dad’s donation. Maddy... Baby who looked eight months’ pregnant because of deadly disease is saved thanks to her doting dad’s kidney donation

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A BABY whose deadly disease made her look eight months’ pregnant has been giving a life-saving kidney transplant, thanks to her dad’s donation.

Maddy Rbykin was in urgent need of an emergency transplant, having been born with an enormous stomach due to a rare condition called Polycystic Kidney Disease (PKD) – the same condition which had tragically killed her parents’ first child just 36 hours after birth.

Maddy Rbykin

Maddy looked like she was eight months’ pregnant

The tiny tot, who is now two, had kidneys THREE TIMES the size of an adult’s when she was born on November 7, 2013.

For the first 18 months of her life, American toddler Maddy was completely drained of energy, sleeping up to 18 hours-a-day, with a bulging belly and throwing up daily.

Maddy Rbykin

Maddy was throwing up nearly every night

Doctors feared she might die – until her deli owner dad Paul Rybkin, 38, was identified as a donor, and she had the life-saving operation on January 19 this year.

Maddy’s parents, from New Jersey, were unaware they were born carriers of the recessive gene for PKD, which causes cysts to develop and can lead to kidney and liver failure, until they fell pregnant with son Nathanial.

Maddy Rbykin

Maddy’s parents were terrified about losing her

Tragically, he died just 36 hours after birth – on August 5 2013 – and doctors warned the couple there was a one in four chance future kids could also develop the condition.

Stay-at-home mum Karen Rodas, also 38, said: “The chances of any of our babies surviving, if they were born with it, was very low.

Maddy Rybkin

Scarily, Maddy was born looking pregnant

“Nathanial didn’t stand a chance. Just 36 hours after his first cry brought him to life, he was gone.”


The high school sweethearts, who are also parents to Jackson Zarsky, nine, from Karen’s previous relationship, and Penelope, one, still wanted to add to their brood.

Maddy Rbykin

Thankfully, Maddy’s dad was a match – and could give her a kidney transplant

Karen said: “When I fell pregnant again, we were both over the moon.

“Then, at our 20 week scan, they found Maddy’s kidneys were enlarged – a sure-sign of PKD, just like Nathaniel. My heart sank.

Maddy Rybkin

‘Daddy’s kidney has saved our little girl’

“I was determined we didn’t lose our baby to the deadly disease again.”

The family would not consider abortion, and found a PKD expert doctor in Philadelphia.

Maddy Rybkin

Maddy recently celebrated her 2nd birthday

On November 7, 2013, they travelled to the Children’s Hospital of Philadelphia for a routine 33-week scan, but Karen was induced into early labour after doctors discovered Maddy was at risk of becoming tangled in the umbilical chord.

After 12 hours Maddy finally arrived, her stomach alarmingly bloated, and she was kept in hospital for seven years – finally heading home on Christmas Eve.

Maddy Rbykin

Maddy has made a miraculous recovery

Despite regular hospital visits, tubes and oxygen treatment – Maddy seemed to be doing well for the first year-and-a-half, until her kidneys suddenly failed and the need to operate became urgent.

Karen said: “With Paul and Maddy, two of my most precious souls, going under the knife, my nerves were a wreck.

Maddy Rybkin

Maddy will need another transplant in 25 years – but her mum said that seems like a lifetime away

“I kept thinking: ‘What if something happens to them both? How will I cope?’”

Thankfully, both operations were a success, and Maddy recovered.

 

Source: The Sun


Henry Okafor

  • Seraphine

    August 22, 2016 #1 Author

    To God be the glory, this child has come to stay in Jesus name Amen.

    Reply

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