Baby born with an incurable disease that causes his skin to fall off if touched Baby born with an incurable disease that causes his skin to fall off if touched
One of the joys of every parent is in being able to hold their new baby close. Sadly this cannot be the case for... Baby born with an incurable disease that causes his skin to fall off if touched

One of the joys of every parent is in being able to hold their new baby close. Sadly this cannot be the case for Kadyem, 22, and Kyera, 20, the first time parents of a baby born on December 28 with a rare incurable disease which makes his skin peel off when touched.

Baby Kaheel Clark-Smith was diagnosed at birth with Epidermolyosis Bullosa (EB) after he was born with small blisters on his arm, but the doctors dismissed it as a mild case and sent him home, however, he had extreme breakout days later that resulted in blisters and the loss of 60% of his skin and that was when it was discovered that he has the worst case of the disease.

Kaheel’s parents, who are unable to cuddle or kiss their baby, are raising funds to fly their son to a specialist EB centre in Ohio since the hospital where their son was born in Seattle, Washington has very little experience in handling such case.

Khaleel’s aunt, Brandi Smith, revealed the extent of the trauma these new parents and their child are having to deal with;


“This is their first child and they are so overwhelmed and broken. We found out the day he was born and didn’t know anything about it. We had to do all the research at home,” She said.

“We found out this was the ‘worst disease you’ve never heard of’ and we were so heartbroken. Even a cuddle or a kiss can cause his skin to blister. The doctors gave us false hope because he was eating and all his vital signs were fine. Then he had a bad breakout and he was admitted to NICU on Jan 4th.

“We just got back the results from the biopsies and have been told it’s the worst type of EB.”

Brandi started a GoFundMe page to help raise $30,000 for the medical flight to get the baby to the care of experts in Ohio and also for the expensive special clothing and bandage needed to wrap Khaleel.

Henry Okafor

  • Dre Moore

    2017-01-28 #1 Author

    I pray that everything get better for this child. I send my condolences??

    Reply

    • Kia

      2017-02-02 #2 Author

      I pray for her this so sad 😣

      Reply

      • Lexus

        2017-02-03 #3 Author

        So sad

        Reply

      • Shangari

        2017-02-03 #4 Author

        Pray the baby boy. God bless you my little

        Reply

    • ShaDariel Thomeshia

      2017-02-03 #5 Author

      Omg 😩 I’m praying for the precious baby boy 🖤

      Reply

    • Iniki

      2017-02-03 #6 Author

      I hope everything gets better I’m praying

      Reply

    • Monique

      2017-02-06 #7 Author

      Praying for this sweet baby

      Reply

  • A’A’Driana Beaver

    2017-01-28 #8 Author

    Precious baby boy, prayers to them.

    Reply

  • Demondre Moore

    2017-01-28 #9 Author

    Omg I pray everything gets better.

    Reply

  • Kayla

    2017-01-28 #10 Author

    This is so sad .. God bless this beautiful baby!

    Reply

  • Kahniyah Corder

    2017-01-28 #11 Author

    God bless this baby

    Reply

  • Mykiah Arrington

    2017-01-28 #12 Author

    He’s just too cute to be born with something like this ! I pray for him and his family

    Reply

  • Elexis

    2017-01-28 #13 Author

    God bless this beautiful baby ??

    Reply

  • Tian

    2017-01-28 #14 Author

    Broke my heart thats so sad i pray they find a cure or a good type of treatment

    Reply

  • Zedd

    2017-01-29 #15 Author

    So sad I hope they find a cure for the baby

    Reply

  • Mfermin2016

    2017-01-29 #16 Author

    So sad that dis happened to these little angel, god bless him

    Reply

  • Tiambe

    2017-01-29 #17 Author

    Poor little angel, god I pray for his healing

    Reply

  • Ejike McDowell

    2017-01-29 #18 Author

    So sad, may the God almighty heal you in Jesus name. Amen

    Reply

  • esther

    2017-01-29 #19 Author

    how sad ? prayers sent

    Reply

  • Brittany

    2017-01-29 #20 Author

    Poor baby . I hope he feels better

    Reply

  • Shweta sharma

    2017-01-29 #21 Author

    Omg. God please take care of him. I pray for him and his family. Get well soon boy

    Reply

    • Sha

      2017-02-03 #22 Author

      So sad. God will guide you little boy. You be fine soon. God bless you 😇

      Reply

  • Randy smith

    2017-01-29 #23 Author

    I will pray for them wow I really do not feel

    Reply

  • Uneek

    2017-01-29 #24 Author

    So sad can’t imagine how what the parents be going through ?

    Reply

  • Alecia

    2017-01-29 #25 Author

    Hopefully there will be more advancements in medicine that will provide peace for this little one I can’t imagine the feeling of helplessness this family fights everyday I hope it turns around for them

    Reply

  • Sarah

    2017-01-29 #26 Author

    Such a heart breaking story.May God almighty Heal him in Jesus name.

    Reply

  • Dana Sutton

    2017-01-29 #27 Author

    Omg so heart breaking prayers going up lord cover him with your holy angels ? heel this baby ❤️

    Reply

  • Brianna

    2017-01-29 #28 Author

    This hurt my heart . I love my child dearly and to think that this happened to a innocent child breaks my heart…… I will be praying for them .

    Reply

  • Quay

    2017-01-29 #29 Author

    Praying everything work out for this family

    Reply

  • Sharaifa shasha

    2017-01-29 #30 Author

    God bless this baby

    Reply

  • Antwun

    2017-01-30 #31 Author

    What’s the name of the disease and is it common??

    Reply

  • Jesse

    2017-01-30 #32 Author

    Hope he gets better

    Reply

  • terrance

    2017-01-30 #33 Author

    Prayers to the baby and family

    Reply

  • Tazz

    2017-01-30 #34 Author

    I pray for this baby &’ the family . Hope he ok .

    Reply

  • Shanny

    2017-01-30 #35 Author

    This is sad ? I’m praying for him !

    Reply

  • Jessecia

    2017-01-30 #36 Author

    Prayers going up ?? This really breaks my heart ?

    Reply

  • Natalie

    2017-01-30 #37 Author

    So sorry to read about this. I Pray in Jesus name that this baby boy is healed. I also pray that his parents will have the funds to take him to the best doctors hired by GOD.

    Reply

    • Selena

      2017-02-02 #38 Author

      Praying! Poor little guy

      Reply

  • Caitlin Dotson

    2017-01-31 #39 Author

    So sad ! He’s so precious❤️?

    Reply

  • Lakeshia Henderson

    2017-01-31 #40 Author

    I’m praying for you guys.

    Reply

  • Jovan Dennis

    2017-01-31 #41 Author

    Praying for this child and her family ??✝️

    Reply

  • daysha williams

    2017-01-31 #42 Author

    still so precious, im praying for her and the family.

    Reply

  • Gabriella

    2017-01-31 #43 Author

    Omg this is so sad.. prayers sent to sweet baby!

    Reply

  • Alexus

    2017-01-31 #44 Author

    Still so handsome praying for him

    Reply

  • Satin Fleming

    2017-01-31 #45 Author

    That’s so sad. Some of us should aprreciate life more

    Reply

  • Markeisha Simmons

    2017-01-31 #46 Author

    OMG… this is so sad prayers are definetly going up for this prexious angel and family. God got them prayera going up blessings coming down

    Reply

  • Alisha Dennis

    2017-01-31 #47 Author

    Praying for a miracle for this baby .

    Reply

  • Brandy Jordan

    2017-01-31 #48 Author

    Prayers ❤️This poor boy

    Reply

  • Grace

    2017-02-01 #49 Author

    Omggg Wow 💔😢 unbelievable smh this is so sickening

    Reply

  • Ronnia

    2017-02-01 #50 Author

    God Bless this baby

    Reply

  • Kierra Haley

    2017-02-01 #51 Author

    Oh my gosh.this is so sad. I can only imagine what the baby is going through.

    Reply

  • Kylee

    2017-02-01 #52 Author

    So sad . I couldn’t even imagine.

    Reply

  • Morgan

    2017-02-01 #53 Author

    Aw, poor lil guy🙁 Sending my prayers He gets better ✝️💟

    Reply

  • Blaisey Conklin

    2017-02-01 #54 Author

    Poor baby! I wish I could heal him!

    Reply

  • Tiara

    2017-02-01 #55 Author

    Omg this is really sad praying for this beautiful baby

    Reply

  • Yoshieka

    2017-02-02 #56 Author

    Awww prayers for the little guy

    Reply

  • Mailaya

    2017-02-02 #57 Author

    I pray he gets better, remember god has the last say so.

    Reply

  • Audjenea

    2017-02-02 #58 Author

    So sad. I’m praying for this poor lil one😞😥 stay up baby

    Reply

  • Nicole

    2017-02-02 #59 Author

    This is so sad and too heartbreaking. Praying this child gets better .

    Reply

  • Star Hernandez

    2017-02-02 #60 Author

    This is so sad not being able to hold ur own child just for the baby’s safety.

    Reply

  • Avery

    2017-02-02 #61 Author

    Heartbreaking 😢

    Reply

  • Maridel

    2017-02-02 #62 Author

    So sad… She got such strong and great parents…. Feel really sad for baby, can’t imagine what she’s going through….

    Reply

  • Brentashia johnson

    2017-02-02 #63 Author

    God bless this baby ❤

    Reply

  • Success d’actualizer

    2017-02-02 #64 Author

    I wish this baby well……. God bless this baby

    Reply

  • Success d’actualizer

    2017-02-02 #65 Author

    I wish this baby well…. God bless this baby

    Reply

  • Shakera

    2017-02-02 #66 Author

    It’s always hard to see your cistern going through things, Abe it’s even harder to know it’s not much you can do but nurture him. Lord I disk nothing but great health and longevity amongst this baby, in your son jesus name.

    Reply

  • Success d’actualizer

    2017-02-02 #67 Author

    I wish this baby well….. God bless this baby

    Reply

  • Shakera Baker

    2017-02-02 #68 Author

    God bless you sweet baby, your in my prayers

    Reply

  • Angelie Caunsag

    2017-02-02 #69 Author

    Feel so sorry for this baby. To the parents, just pray. Believe that everything will be alright. God bless you baby.

    Reply

  • Angelie Caunsag

    2017-02-02 #70 Author

    I love you baby. Ill pray for you.

    Reply

  • Vonya

    2017-02-02 #71 Author

    Praying for this family and precious child ❤️

    Reply

    • Deidra Dinero

      2017-02-02 #72 Author

      Prayers to this beautiful baby , super sad 😫

      Reply

  • Onteria Hill

    2017-02-02 #73 Author

    This has to be one of a parents worst nightmares. To bring such a beautiful baby into this world, and you have to be cognizant of what you do to him… That’s terrible. God bless you guys. 💖

    Reply

  • Onteria Hill

    2017-02-02 #75 Author

    This has to be one of many of a parents nightmare. To bring such a beautiful creation into this world, and having to be cognizant of how you approach your child. God bless this family.💖

    Reply

  • Michella Roberson

    2017-02-02 #76 Author

    I hope that he gets well in the name of jesus. It hurts me to see babies go threw things like this

    Reply

  • ShunTerrikuh

    2017-02-02 #77 Author

    Awee. Poor baby i pray they find a cure for him

    Reply

  • Lakeydra mack

    2017-02-02 #78 Author

    So sad ! Prayers going up for baby Kaheel . I ask god to wrap his arms around him and heal him fast.

    Reply

  • Lanitha Beauchamp

    2017-02-02 #79 Author

    I Can Only Imagine What This Family Is Going Through Right Now..I pray that God heels Her Soon I Will Keep This Family In My Prayers🙏❤

    Reply

  • Phatsaya

    2017-02-02 #80 Author

    May God bless you little baby ❤️

    Reply

  • Danette

    2017-02-02 #81 Author

    God be with this family … This is so sad hope he can be cured

    Reply

  • Phatsaya

    2017-02-02 #82 Author

    May God bless you little girl ❤️

    Reply

  • Danette

    2017-02-02 #83 Author

    Lord place your heeling hands over him this is a mother’s worst nightmare

    Reply

  • Tonae

    2017-02-02 #84 Author

    my heart is hurting for the parents. this is one of my biggest fears, being able to not hold my baby. I praying for you guys

    Reply

  • Tonae

    2017-02-02 #85 Author

    im praying for the baby

    Reply

  • Deidra Dinero

    2017-02-02 #86 Author

    This is very sad 😩 This family is in my prayers. Very heart breaking.

    Reply

  • Teaa Rushinn

    2017-02-03 #87 Author

    So heartbreaking

    Reply

  • Tiffany

    2017-02-03 #88 Author

    OHMYGAWD , my heart goes out to those parents & that beautiful baby, prayers go out to the family .

    Reply

  • Sivashangari

    2017-02-03 #89 Author

    I seriously can’t see they in this situation. Little boy how can take the pains. Oh god please save this little. God bless him . Get well soon little angel. My prayer for you

    Reply

  • ShaDariel Thomeshia

    2017-02-03 #90 Author

    This is so sad 😩 I’ll be praying 🙌🏾

    Reply

  • ShaDariel Thomeshia

    2017-02-03 #91 Author

    Omg 😩 This is so sad , I’ll send a prayer up for you baby boy🙌🏾

    Reply

    • Ariel

      2017-02-03 #92 Author

      How does this even happen?? This is so sad!! Praying for his family!!

      Reply

  • Lexus

    2017-02-03 #93 Author

    So sad

    Reply

  • Dontavia Jackson

    2017-02-03 #94 Author

    This is so sad

    Reply

  • Taylor

    2017-02-03 #95 Author

    God bless the baby and the parents this is so sad.

    Reply

  • mae

    2017-02-10 #96 Author

    It breaks my heart, I will pray for you little boy.to the parents pls be strong for your child.God hear us anytime, anywhere.your child is the most precious gift you could ever have.

    Reply

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