This Child, Suffering From A Rare Genetic Condition, Is Known As The ‘Baby Hulk’ This Child, Suffering From A Rare Genetic Condition, Is Known As The ‘Baby Hulk’
Until a few decades ago, expecting parents had no idea what to expect when their baby arrived. But with the invention of some incredible... This Child, Suffering From A Rare Genetic Condition, Is Known As The ‘Baby Hulk’

Until a few decades ago, expecting parents had no idea what to expect when their baby arrived. But with the invention of some incredible technologies, the complications that can occur during childbirth have been drastically reduced. In today’s modern world, one can detect most of the possible genetic disorders and other diseases a child may possess in the early stages of pregnancy. However, there are things that even technology can’t predict, prevent, or cure. Some things must simply run their course. Just ask Joni Gatlin and her newborn daughter whose story is heartbreaking.

When Joni Gatlin went in for a pregnancy scan at 15 weeks, the doctors saw some irregular fluid buildup, but figured it was too early to make assumptions.


But when Joni’s daughter Madison was born, it was clear that she was not like other kids.

 

Madison’s right arm weighed five pounds more than her left one.

It’s a condition known as “cloves” which causes lymphatic fluid to build up in the arms and chest. It affects only 200 people in the world, making it an extremely rare condition.
The doctors knew that without treatment, the swelling would continue to grow…

Madison’s parents gave her the nickname “Baby Hulk” after they told some young boys that the Hulk was her dad.

The kids thought it was the coolest and were actually impressed by Madison’s condition, so the parents just kept on using the nickname.
Joni said, “Her nickname started during an instance where twin boys asked me what was wrong with her, I told them her daddy was the Hulk and they thought it was the coolest thing ever. After I told them she was the Hulk’s daughter they wanted to be her best friend.”

 

Joni’s aware that her daughter might get glances from strangers, but hopes that it won’t affect the way people who interact with her treat her.

“I don’t want people to be scared of my daughter, there’s nothing wrong with her, she just has a gene malfunction.”
“I’ve told younger children she’s a baby Hulk because I don’t think they would understand the condition, and at least this way, they aren’t scared of her and don’t treat her differently. You have to try to have a sense of humor with something like this.”

 

The parents had no idea what to do when Madison was born. They weren’t aware of the disease and were taken aback by her appearance at birth.

“When she was born she looked like a cute little blob with legs. We believed the mass weighed 3 lb. Now I think it’s around 5 lb.”

 

They’re treating the symptoms now, putting her in compression clothing and draining the fluid twice per day.

Slowly, the fluid is drained and replaced with saline.

 

The condition is ultimately treatable.

Once the swelling goes down to a certain size, it will be treatable through surgery. The family is low on funds, so they’ve turned towards crowdsourcing to help raise the money necessary for her treatment.

Henry Okafor

  • Demonica

    2017-02-05 #1 Author

    I pray that something will be figured out to help this beautiful baby live a normal life.

    Reply

  • Jeanye

    2017-02-05 #2 Author

    She’s still so very beautiful. And an active happy healthy baby is all we need. ❤

    Reply

  • Foster

    2017-02-05 #3 Author

    It’s So Sad She Have To Go Threw This At A Early Age And This Really Got My Attention .

    Reply

  • Jazmine Robinson

    2017-02-05 #4 Author

    As a parent I probably would’ve been heart broken if my child had this gene malfunction but I love the fact that baby Madison’s parents embraces her differences. It seem as if the wouldn’t have wanted there child to be any other way. God makes no mistakes she may look different but I bet she’s the most loving child ever. I would like to say continue to look at your child like she’s normal and she will never feel any different. I hope you guys are able to raise the money for her surgery

    Reply

  • Kashayla

    2017-02-06 #5 Author

    And she’s still gorgeous and perfect in every way , may god continue you to bless and cover you sweet angel . She’s doing great 😇

    Reply

  • Heaven

    2017-02-07 #6 Author

    I wouldn’t even know what to do but god got her shes very bless still beautiful young lady

    Reply

  • Dezaria

    2017-02-10 #7 Author

    She still is very beautiful, God have her in his hands

    Reply

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