Court Rules That These Parents Must Stop Trying To Save Son And Should Allow Him “die with dignity” Court Rules That These Parents Must Stop Trying To Save Son And Should Allow Him “die with dignity”
The desperate parents of a baby suffering from a rare genetic condition have suffered heartbreak after Europe’s top human rights court rejected their plea... Court Rules That These Parents Must Stop Trying To Save Son And Should Allow Him “die with dignity”

The desperate parents of a baby suffering from a rare genetic condition have suffered heartbreak after Europe’s top human rights court rejected their plea to intervene in the case of their son.

They had vowed to save nine-month-old Charlie Gard, appealing against a UK court ruling that he should be allowed to “die with dignity”. Here’s the lowdown on the heartbreaking case…

Little Charlie is seen here with mum Connie and dad Chris

Little Charlie is seen here with mum Connie and dad Chris

Who is Charlie Gard?

Charlie Gard is just ten months old, the fight for his life has touched the world.

A major fundraising campaign was set up to pay for pioneering treatment in the USA which his mum and dad, Connie and Chris, hoped would save his life.

The tot is in the “terminal stages” of a disease called mitochondrial DNA depletion syndrome, after both of his parents were unknowingly carrying the faulty gene.

Charlie is said to be one of only 16 people to ever have the condition and his desperate mum and dad have been unable to find a treatment in the UK for him.

Doctors at Great Ormond Street said Charlie should be allowed to die in dignity and applied for permission to have his ventilator switched off.

But his parents and supporters have been fighting for him to be given a final chance, and raised £1.3million so he can be sent to America for treatment.

His dad made a desperate plea with the court to save his son, begging: “He deserves this chance”.

Clutching his son’s toy monkey, Chris Gard told the High Court: “My son is the apple of my eye and I would do anything for him.”

Charlie’s mum and dad say he is a “prisoner” in hospital and Great Ormond Street’s treatment has been “inhuman”.

Chris Gard and Connie Yates arrive at The Royal Courts of Justice in London for a previous hearing

Chris Gard and Connie Yates arrive at The Royal Courts of Justice in London for a previous hearing

What did the courts rule and why did they go to the European Court?

Charlie’s distraught parents were told by a judge at the High Court on April 11 that his life support machine can be turned off.

The court sided with doctors against the couple, ruling that it would be cruel to try and extend Charlie’s life further.

Mr Justice Francis said he had made the decision with the “heaviest of hearts” but with “complete conviction” for Charlie’s best interest.

On May 2, the couple took their fight to the Court of Appeal where they begged senior judges not to stop them trying to save their badly brain-damaged son.

Connie and Chris hired new lawyers, from Harris Da Silva Solicitors, for the second chance at saving their son’s life.

Three Court of Appeal judges upheld the High Court ruling on May 25.

Connie Yates shared a photograph of little Charlie Gard with his eyes open

Connie Yates shared a photograph of little Charlie Gard with his eyes open

But the tot was given a last minute reprieve when Britain’s Supreme Court agreed to review the case, hours before his life support machine was due to be switched off.

Charlie’s parents had feared his life would be ended at midnight on May 31, but he remained on life support until the Supreme Court make a decision.

A preliminary hearing was heard on Thursday June 8, before the highest court in the land ruled that Charlie’s life support must be switched off.

The family vowed to fight until the “bitter end” to save Charlie and their lawyers took the case to the European Courts to challenge British laws over parental rights.

But on June 27, the European Court of Human Rights ruled that they would not intervene in the case – a ruling which means his life-support will come to an end.

Describing the decision as “final”, a statement issued by the court said judges “endorsed in substance the approach by the domestic courts and thus declared the application inadmissible.”

What did Charlie Gard’s parents say after the European Court ruling?

Connie Yates and Chris Gard lie by their son's bed, with the little boy's life support to be turned off on Friday

Connie Yates and Chris Gard lie by their son’s bed, with the little boy’s life support to be turned off on Friday

His devastated parents broke down in tears after revealing their final wish that their little boy would die at home has been denied.

Describing his baby boy as a “trooper” and “soldier”, dad Chris wept as he said: “He will fight to the very end but we’re not allowed to fight for him anymore.

“We can’t even take our own son home to die. We have been denied that.”

Mum Connie said they had always vowed to have Charlie come home if doctors ruled he would no longer be treated

She said: “We chose to take Charlie home to die. That is our last wish, if it went this way, the way that it’s gone.

“We promised out little boy every single day that we would take him home. That is a promise we thought we could keep.”

The couple said they had even offered to pay privately to have Charlie to be returned to their home, to have a bath and sleep in his cot, but had still been refused by the hospital.

What is mitochondrial DNA depletion syndrome?

Mitochondrial DNA depletion syndrome refers to a group of disorders that cause affected tissues to suffer from a significant drop in mitochondrial DNA.

The DNA is found in the mitochondria of cells – an organelle found in most cells in which respiration and energy production occur.

This means, as in Charlie’s case, that sufferers do not get energy to their muscles, kidneys and brain.

MDS is typically fatal in infancy and early childhood.

There is currently no cure but some treatments have shown a reduction in symptoms.

The parents of Charlie Gard wanted him to be flown to the USA where he can have nucleoside bypass therapy

The parents of Charlie Gard wanted him to be flown to the USA where he can have nucleoside bypass therapy

What is nucleoside bypass therapy?

Nucleoside bypass therapy is a new treatment that is taken as an oral medication.

It could theoretically have repaired Charlie’s mitochondrial DNA and helped it synthesise again by giving him the naturally occurring compounds his body isn’t able to produce.

A US expert said 18 people have been treated with nucleoside bypass therapy.

But he added that none of them were in a condition as severe as Charlie’s.

 

 

Credit: TheSun

Henry Okafor

  • Queen

    2017-06-29 #1 Author

    Godbless an good luck she is beautiful 😍

    Reply

  • Inkera

    2017-06-29 #2 Author

    I just loved this story so much

    Reply

  • Adriana

    2017-06-29 #3 Author

    What a hard decision for this parents to make!

    Reply

  • Tanisha

    2017-06-30 #4 Author

    The hardest thing any parent has to endure god bless

    Reply

  • Esha

    2017-06-30 #5 Author

    I feel they should have a choice of what happens to their child without anyone else’s input .

    Reply

  • Deros

    2017-06-30 #6 Author

    Thanks for the advice

    Reply

  • Akeda

    2017-06-30 #7 Author

    I think all kids deserve the right to live & nobody shouldn’t tell the parents to stop fighting for the life of their son.
    That’s just wrong on so many levels.

    Reply

  • Niesha

    2017-06-30 #8 Author

    This is sad no parent wants to let there Kid Die smh

    Reply

  • Aundrea

    2017-06-30 #9 Author

    Wow this is so sad 🙏🏽 For yu all

    Reply

  • Latoya

    2017-06-30 #10 Author

    This is the hardest thing parents will ever go thru i pray to never have to have to make a decision like that

    Reply

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