8-year-old girl born with rare genetic disorder has undergone 29 facial surgeries, but this brave child is always smiling! 8-year-old girl born with rare genetic disorder has undergone 29 facial surgeries, but this brave child is always smiling!
This girl was born with a rare genetic disease that caused the underdevelopment of facial tissue and bone. She has already had 29 operations... 8-year-old girl born with rare genetic disorder has undergone 29 facial surgeries, but this brave child is always smiling!

This girl was born with a rare genetic disease that caused the underdevelopment of facial tissue and bone. She has already had 29 operations and requires ongoing care. But despite her condition, she still has a zest for life and is a happy child.

Maisie Coulton from Hampshire was born with Treacher Collins syndrome (TCS), causing her face and head to have deformities, typically involving the ears, eyes, cheekbones, and jawbone. Those diagnosed can also suffer from breathing and hearing problems.

For Maisie’s parents, her disorder came as a shock, as they were expecting a healthy baby.

“In the scans Maisie looked fine, so there seemed no reason to worry about her,” Maisie’s mother, Sarah Coulton, said in a report by the Daily Mail. “But as soon as she was born, it was clear there were major health issues. Maisie had structural issues with her face—she had no ears and she couldn’t breathe so was intubated immediately.”

That surgery was only the beginning of many operations that Maisie had to go through. The next day, she had a tracheostomy, an operation to create a hole in the neck, so that a tube could be inserted and allow her to breathe.

©YouTube Screenshot | National Deaf Children’s

Later, Maisie had to be taken to St Thomas’ Hospital in London, where she was in intensive care for a week. Then she spent three weeks in special care and eight weeks in general care.

Since her first operation when Maisie was just a day old, she has had 29 procedures on her jaw, teeth, cheeks, and eyes. She will need to continue having surgeries until she stops growing as a teenager.


©YouTube Screenshot | National Deaf Children’s Society

Maisie’s parents had to learn how to take care of their daughter’s special needs at home.


©YouTube Screenshot | National Deaf Children’s Society

“We had to learn how to suction her tracheostomy and do weekly and emergency tube changes. We were in a daze. We were still trying to get our heads around the fact that our baby had been born with a serious condition, and then we had to learn all this,” said Sarah.


©YouTube Screenshot | National Deaf Children’s Society

“Everything had been so traumatic, I didn’t see her for the first two days, and then I had to be a nurse more than a mother, but after six months things did settle down and our routine became normal to us,” she said.


©Facebook | Paul Coulton

While Maisie feels self-conscious of her appearance and gets fed up with people looking at her, she is also a happy child who brings much joy to the whole family. According to Sarah, Maisie is one of the happiest children you could meet.

“She’s an inspiration. I don’t know how she does it. Maisie is always happy to talk about her TCS to others and help them understand,” she said.


©Facebook | Paul Coulton

Henry Okafor

  • Tamara

    2017-08-16 #1 Author

    Stay strong baby girl god bless her❤️

    Reply

  • Brenda

    2017-08-16 #2 Author

    What an amazing story! She is so brace and strong! God bless!

    Reply

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