Baby Carters Story Baby Carters Story
“You see this boy, he is rare. To you he may seem normal & carefree, but he has a story. Everyday, Carter wakes up... Baby Carters Story

“You see this boy, he is rare. To you he may seem normal & carefree, but he has a story. Everyday, Carter wakes up happy & I thank God for protecting him through the night. We are part of a club (one that I wish we could escape) but the lord is testing us so all we can do is have faith. This club we are in is where no one wants to be. It’s a club where I don’t know when my child will be taken from me.

Will today be the last day Carter understands what we say? Tomorrow, will he still be able to go out to run & play? When will be the last time he’s able to call for his sister, me or his dad? I have no idea & I can’t help but be sad, angry & mad. I’ve kissed many bumps, scrapes, cuts & bruises but this is something I cannot kiss away & make better. With #Sanfilippo, everyone looses.

Our cards are dealt & there is nothing we can do. Well, let me rephrase that, we can do something but we need you! These children have no time to spare & with your help we could find a cure, we’re almost there! We need people to help us spread awareness about it & help raise funds. Even if it’s telling just one person or a dollar donation, it helps a ton! With the cure so close & right in sight, please help us make it there so we can give these children a chance at life.” – Carter’s mom.

P.S. Sanfilippo is a progressive brain disorder in little children, caused by just one missing enzyme… but it’s an important one. Because Carter doesn’t have this enzyme, toxic storage material is building up in his brain every second. You wouldn’t know it by just looking at him, but this disease will soon begin shutting down critical areas needed to function. As degeneration rapidly progresses, Carter will lose the ability to talk, swallow, walk, he will develop seizures, will suffer severe dementia & eventually die. They call it a “Childhood #Alzheimer’s.” At age 6, Carter is starting to show the signs and symptoms the disease. Right now he can still talk, a bit. He can still run & play with his sister Sophia. He’s hanging on for now, but just barely. This campaign for his #LIFE is as urgent as it gets. If you have a minute, please click on the link in our bio to see how to help.

Obinna Onyia

Your email address will not be published. Required fields are marked *