Girl Born With Severely Deformed Head Smiles Despite Being Labelled As ‘Alien’ By Strangers Girl Born With Severely Deformed Head Smiles Despite Being Labelled As ‘Alien’ By Strangers
A three-year-old girl born with a severely deformed head suffers a rare genetic disorder which causes facial deformities has defied her haters by smiling... Girl Born With Severely Deformed Head Smiles Despite Being Labelled As ‘Alien’ By Strangers

A three-year-old girl born with a severely deformed head suffers a rare genetic disorder which causes facial deformities has defied her haters by smiling in their face – despite them labelling her an ‘alien’.

Girl Born With Severely Deformed Head Smiles Despite Being Labelled As ‘Alien’ By Strangers

Ryley Nazario has Pfeiffer Syndrome, which causes deformities and affects the shape of the head.It is a disorder caused by a genetic mutation and causes bones to grow abnormally. In Ryley’s case, her facial features are compressed, which makes it difficult to breathe. The three-year-old lives with a trach tube in her neck, which helps her breathe without difficulty. Because of her condition, she also lives with scoliosis.

Girl Born With Severely Deformed Head Smiles Despite Being Labelled As 'Alien' By Strangers

Her mum Vanessa Nazario, 39, said ever since Ryley was born she has attracted attention, with strangers offering pity or making nasty comments.

Despite all these, she says the brave toddler is constantly grinning – a trait that’s earned her the affectionate nickname ‘Smiley Ryley’. Vanessa, from Rockland, New York, said: ‘A few weeks ago, a kid came up to me and said Ryley looked like an alien, which was obviously so hurtful.

Girl Born With Severely Deformed Head Smiles Despite Being Labelled As 'Alien' By Strangers

‘I just asked him how he would feel if someone said that he looked like an alien and explained that Ryley is not any different to anyone else. ‘It is heart-wrenching to cope with that on a daily basis though.’

She says the family has to deal with the stares daily and doesn’t need anyone to feel sorry for Ryley because she’s an amazing child.

Girl Born With Severely Deformed Head Smiles Despite Being Labelled As 'Alien' By Strangers

The toddler has already been through more than ten surgeries in her short life.

Vanessa, a credentialing coordinator, said she and her husband Jose, 43, who is vice president of an IT company, are preparing her for the most intense operation so far.

Girl Born With Severely Deformed Head Smiles Despite Being Labelled As 'Alien' By Strangers

When she turns five, Ryley will undergo mid-face surgery in the Children’s Hospital of Philadelphia. This op will move the bones of her face forward, which will allow her to breathe without a trach tube and also give her facial characteristics she currently does not have.

 

Obinna Onyia

  • Brittaney

    2019-01-09 #1 Author

    You’re beautiful ❤️

    Reply

  • Sojourner Drye

    2019-01-09 #2 Author

    God bless this beautiful young girl

    Reply

  • Danielle newton

    2019-01-09 #3 Author

    Keep going. Strong baby girl, you’re beautiful inside and out ❤️❤️❤️

    Reply

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