Her skin hardened within seconds & it began to split. Behind the curtain, I sensed their panic. My husband’s silence scared me. ‘It’s bad’,...

Her skin hardened within seconds & it began to split. Behind the curtain, I sensed their panic. My husband’s silence scared me. ‘It’s bad’, he said.

As I sat alone in a hospital room in shock, I just kept hearing, ‘What just happened?’ Visions of my daughter, the little girl I had thought of, prayed about & planned for years for was finally. But the moment that was supposed to complete my family, the last piece in the most beautiful puzzle, was suddenly gone. Broken and alone, all I could do was stare, and picture her body in my arms.
I had a normal pregnancy up until my water broke at 34 weeks. Still her stats were great, we had a C-section because she was breach. It was all very calm, until it wasn’t. When they took her out, I heard her cry & they said, ‘She is beautiful.’ Those are the words every mother wants to hear, so I smiled & relaxed. Behind that curtain though, things were becoming very terrifying.
#HarlequinIchthyosis is not something most people, even those in the medical profession, are familiar with. As they tried frantically to help her, her skin hardened within seconds, split up & caused open wounds all over her body. Behind the curtain I began to sense their panic & I asked if things were ok. They said yes & asked if I wanted more medicine to calm me; after that, I was out for the rest of what occurred. My husband was made to choose between bigger hospitals to transfer us to because of Anna’s condition, but they didn’t know what it was. He was handed our Anna and was able to look deep into her eyes just moments before they swelled, and she could not open them again for many days.

When I woke up, I was taken to where my baby was & on the way, I asked if she was ok & they responded ‘We will talk about that in the room.’ I didn’t ask for more; I didn’t want to know more. They started by saying it was a birth defect & I thought, it’s ok it can be fixed with surgery but My husband’s silence scared me; he just sat in shock as I prodded for more info. He just kept saying, ‘It’s bad but Jennie, I looked in her eyes, and she has the most beautiful soul.’ Continue reading in the comment section!

Obinna Onyia

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